World Down Syndrome Day 2011

3-21-2011
For 3 copies of the 21st chromosome, unique to Down syndrome.

World Down Syndrome Day.

Take the chance to tell someone a wonderful thing about someone you know with DS. Or share with someone how your views have changed now that you know and love someone with DS.

Today, make a decision to be intentional about making others aware that a diagnosis of DS does not have to be met with utter despair, it doesn’t have to be a death sentence, and it is not a reason to take an unborn child’s life.

Just tell someone.

The IDSC for Life has put together a really nice video of some of our little beauties… I have my favorite in there, and a few who follow close behind her. Maybe posting a link to this in your Facebook status or on your blog or Twitter would be a great awareness opportunity.

Meeting tomorrow—Dance Party!

March 20 at 4pm at Family Therapy Solutions.

It’s a Dance Day Party!! Get your groove on!!

Important meeting this Sunday!

If you haven’t RSVP’d for our meeting this Sunday afternoon, please do so right away.  It’s going to be a great one.

The Met Life Center for Special Needs Planning will be presenting a FREE seminar on Feb 27 at 4pm at Family Therapy Solutions.  Family Therapy is located @ 2120 Bryan Valley Commercial Drive (Bryan Rd in center where Radical Resale is) in O Fallon, MO.

Family Therapy Solutions

FOOD WILL BE PROVIDED.

This will focus on two main elements. 

~~Why having a special needs trust is important to ensure that your child will receive the appropriate benefits from all available resources as they move through the childhood and adult years.

~~How the process of setting up a special needs trust works.

This presentation will be given by J. Todd Gentry, from the Met Life Center for Special Needs Planning in Chesterfield.  He also serves on the DSAGSL board of directors.  The meeting will be casual with plenty of interaction for questions and answers, as well as information on the legal side of the trust.

We have several families who have attended this seminar before and have spoken highly of it.  Some are currently in process of setting up their trusts through Todd and the Met Life office.

This is VERY valuable information, so we highly encourage you to make a point to come.  It is important to have all the information about how to best plan for your child's future care.

We hope to see you there!!

Superstar Parade: Bumblebee, bug, and bones

Braska was a friendly bumblebee, going to Trunk or Treat at her PaPaw's church.


Jack borrowed Braska's bumblebee "hat" for a while.

Jack, AKA Mr. Bones, and Kinlee the Ladybug were excited to be going to the Fall Festival!

Don't forget to send us your pictures of birthdays, holiday celebrations, or any other events that you'd like to share! DownSyndromeStC@gmail.com

Superstar Parade: Toy Story Halloween

(Don’t forget, if you haven’t completed the survey, please do! Click here.)

We LOVE to get pictures to share, and this is a GREAT time to send us your Halloween pictures to show off your kiddos!

Here’s Shane (Woody), Megan (Jessie), and William (Buzz Lightyear) showing some very marvelous smiles! 

Send your Halloween pics to DownSyndromeStC@gmail.com and we’ll share them with the group!

Your chance to help us improve!

Hopefully you’ve all received the email from Adrienne with the link to the survey that we have put together to try to learn what our StC group members are looking for in group events, resources, and activities.

Please take the time to complete the survey as soon as you can.  It will only take about 2-3 minutes and it will help us plan the future of the group in a way that will include and provide interesting offerings for the most people possible.

Click here to go to the online survey.  It is anonymous, so please let us know how we are doing and how we can improve!

Happy Birthday, Anthony!!

Our friend Anthony turned 3 last Sunday, October 17! Woo Hoo!

He had a super cool Buzz Lightyear party at the park and clearly had lots of fun.  Look at those smiles!!

We’re glad you had a great birthday, Anthony!!

(We want to celebrate with YOU, too, so send us your kids’ birthday pictures to share with the group! )